Information and guidance for carers:
- Up to date guidance and support for Individual employers
- Up to date guidance and support for Personal Assistants
- How the Coronavirus Act 2020 changes NHS Continuing Healthcare
- East Sussex County Council Updates for Care Providers – Sign up to regular email briefings through this link
- To register yourself or someone you care for on the shielding register– for those who are extremely vulnerable to Coronavirus.
- Easy Read Guide: Rules about the Mental Capacity Act and the Deprivation of Liberty Safeguards in relation to caring for people during the Coronavirus pandemic
- The Mental Capacity Act (2005) (MCA) and deprivation of liberty safeguards (DoLS) during the coronavirus (COVID-19) pandemic: guidance applies to those caring for adults who lack the relevant mental capacity to consent to their care and treatmen
Practical support and groups for carers:
- A podcast by mother, writer and campaigner Nicky Clark exploring lived experience and caring for people with complex support needs.
- Care for Carers Website or Facebook group – offering support to unpaid carers
- Various Webinars Including: Employing PAs; Welfare system changes; Staying at home during the Pandemic
- Support Children and Adults with learning disabilities at home during Covid 19 – by the challenging behaviour foundation
- Easy read guide to COVID—19 (Coronavirus)
- A Practical Guide to Self-isolation
- Learning Disabled England webinars to help keep people informed and connected through COVID 19
- Carers Voices Conference – A series of conferences throughout July
Help and Support services
- Hft’s Family Carer Support Service (FCSS) is a free national support service for parent carers and family carers who have a relative aged 16 or over with a learning disability, autism or both. Support is available to all family carers, whether or not their relative is supported by Hft.
- The Challenging Behaviour Foundation continues to publish up-to-date guidance and template letters to support you and have helpline for family carers.
- Respond Family Support Service supporting family members of people with learning disabilities, autism or both who have experienced loss, harm or institutional abuse.
Information for visiting people in residential care:
- The rights and responsibilities of the visitor and care provider.
- A statement from Care England on residential care for people with learning disabilities and risk assessment charts for facilitating visits
- UN Human Rights Commission Statement on the impact of Covid-19 on the human rights of people with disabilities
- Public Inquiry: Unequal impact? Coronavirus, disability and access to services
The Women’s and Equalities Committee are carrying out a public inquiry into the impact of Coronavirus and access to services, health care, mental health, social care and education. Share your views here.
If you have more information or useful links that should be added to this page please email [email protected].
Want to discuss these issues in more detail? Join us for a Peer Support Network virtual meet up.
Image: Project Art Works studio